Project

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AIAN populations worldwide continue to be underrepresented in genomic research for many reasons, one of which is the lack of trained AIAN or Indigenous scientists leading genomic research projects. This project involves two efforts: (1) to improve Indigenous representation in the biomedical workforce and (2) to measure the bioethical impacts of a genomic research training program.

 

Additional Information

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The recently published National Human Genome Research Institute (NHGRI) strategic vision states that "the promise of genomics cannot be fully achieved without attracting, developing, and retaining a diverse workforce”. The inadequate representation of Indigenous scientists in the current biomedical workforce does an extreme disservice to these communities.

First, we aim to expand the involvement of diverse populations with an Indigenous Genomics mentorship program that focuses on building capacity among Indigenous scientists to conduct community-engaged genomic research. We will do this by using a pragmatic, experience-informed approach to support and mentor Indigenous trainees and early career faculty.

Second, we want to examine the impacts of the Summer Internship for INdigenous peoples in Genomics (SING) workshop, a short course that offers training and tools to help early career scientists and community members in making informed decisions about genomic research. Since 2010, the SING program has trained 120 Indigenous scholars from across the US. SING alumni have gone on to complete graduate-level training in genetics and related fields, and many have continued into academic positions. This project objectively measures the impact of the SING program by eliciting the perceptions, understandings, and ethics engagement of past SING participants and faculty members through focus groups, surveys, and social network analysis.

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Future Directions

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We are recruiting our inaugural cohort of Indigenous trainees for the Indigenous Genomics mentorship program. We are also holding our first focus groups this fall for the SING program.